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Driven to Discover

Genetic Testing Among Adult Adoptees

Through scientific advancements and decreased costs in genetic testing, many internationally adopted individuals now have the potential opportunity to learn more about their health history and genetic ancestry through inexpensive direct-to-consumer genetic testing kits, such as 23andMe. However, very little is known about people’s attitude, interest, and knowledge about genetic testing within the adoption community, as well as what factors predict people’s interests in genetic testing. We also do not know what kinds of information people are seeking or not seeking from genetic testing and how they would use such information. To address these gaps, we aim to identify reasons why internationally adopted individuals may choose to complete or abstain from genetic testing. We will also look at how the information given in direct-to-consumer genetic testing kits relates to experiences as adoptees.

We are seeking to recruit 60 internationally adopted individuals between the ages of 18 to 35 years old. Study participants will complete a brief online survey that asks questions about their attitude, interest and knowledge about genetic testing, personal and social experiences, adoption specific experiences, and basic demographics. The survey will take no longer than 30 minutes to complete. Participants will receive a $10 Amazon gift card at the completion of the study.

This research hopes to aid in the understanding of what influences internationally adopted individuals decision-making process when considering whether to have genetic testing done when this new advanced technology is readily available. If you are interested in participating in this study or would like more information, please email the Familee Lab at


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Last modified on November 20, 2008